Lisa Lee and Lewis Little from Ashington, Northumberland, England had everything to live for. Happy together with their 2 year old son Tyler, the future looked bright.
But one year ago Lewis was diagnosed with a rare condition called Brugada syndrome, a genetic disease characterised by abnormal electrocardiogram (ECG) readings and an increased risk of sudden cardiac death. They had, however, been reassured that Lewis was low risk, and at 25 years of age had a long life to look forward to.
But during the night Lisa was awoken by snores from Lewis. She kicked him out of bed, and told him to shut up, but soon realised that something was wrong. He wasn't snoring, it was his death rattle.
Heartbroken Lisa said,
“We were told that Lewis would have a long, happy and healthy life – but he died one year after diagnosis."
“When we were in bed I just thought he was snoring, so I kicked him out of the bed and told him to shut up. But I felt that the sheets were wet and knew something was wrong. I turned the lights on and his face was purple – he wasn’t breathing. I called an ambulance and it felt like it took forever."“They pronounced him dead at the hospital. I later found out that the snoring sound was the air leaving his body. Losing Lewis has destroyed me and our son Tyler.”
Lisa has now started a petition to get people with the rare condition fitted with an implantable cardioverter defibrillator (ICD), a device which restarts the heart.
You too can join this worthy petition by clicking here:
“I believe being fitted with an ICD would have saved my partner’s life. I want people with the same condition to have the choice, low risk or high to have an ICD fitted. The syndrome is a silent killer – I just want to raise awareness of it and make sure something gets done.”
Share this sad story, and help raise awareness of this silent killer, Bruguda syndrome.
You can find more information about this disease on the NHS website by clicking here.